Now and Gwen

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Now and Gwen
I'm a 30-years-young American living in New Zealand. A newlywed, still getting used to saying 'my husband' instead of my partner. My husband and I have just moved to the North Island and are looking forward to discovering what the future holds for us!
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  • No News is Good News 1 day ago We’ve had a pretty low-key week here, since my last post. Nothing major, or exciting to report, really! It is good to be able to say that. Still no spasms. A few big startles, though. Have talked with some other parents of kids with HIE and some of them have reported back that their kids have...
  • 171 Days 1 week ago 171 days. That is how long it’s been since Vivian has had a cluster of spasms. We had a neurologist appointment this week and he said we are seizure free. That the startles I’m seeing in the morning are probably just that, startles. We got to ask all sorts of questions that we never thought...
  • Hope for HIE 2 weeks ago I found a new group of parents last week, ones going through the same thing we are going through with Vivian. Parents of other children who have hypoxic ischemic encephalopathy, or HIE. Vivian’s primary diagnoses is HIE. I haven’t really talked much about it here because we were so focused on...
  • Transitioning, Little by Little 2 weeks ago I’ve written several times about how Vivian would only sleep in her hammock. It started because of her horrible reflux. When we were in hospital, Vivian would hardly sleep. She would scream and scream. Nurses would come from other NICU rooms to try to help soothe her, because being the biggest...
  • 9 Months Old 2 weeks ago Vivian was 9 months old yesterday. Pretty soon our wee Vivian will be outside of me for as long as she was inside of me and I can’t get my head wrapped around that. I can still remember what it was like to be pregnant and so happy. I am happy most days now but […]

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