Now and Gwen

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Now and Gwen
I'm a 30-years-young American living in New Zealand. A newlywed, still getting used to saying 'my husband' instead of my partner. My husband and I have just moved to the North Island and are looking forward to discovering what the future holds for us!
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  • We made it to a month! 3 weeks ago Happy Samhain and Beltane! It’s been 4 weeks (and one day) since Vivian’s last spasm! We are quietly hopeful about this. Her last does of prednisolone was last Monday. We haven’t had any follow-up appointment with our neurologist, though. Not sure if we will? We did have a follow-up with...
  • 4 Months! 2 months ago We’ve reached the point where I think most parents start counting their child’s age by months instead of weeks. It’s very hard to believe that we have come this far, after Ben was told Vivian wouldn’t make it on the night she was born. On the infantile spasms front: No further seizures...
  • Starting Over 2 months ago We are back to day one, after making it to 5 weeks and 2 days of no seizures. Vivian had some on Thursday morning.  It was a very sad morning for Ben and me. Heartbreaking. We started weaning her off the prednisolone over the past few weeks. This week, she is down to 2ml a day. Our […]
  • Milestones and Memories 3 months ago Another week has flown by and I’m happy to report that Vivian is still seizure free! :) This is so awesome. *whispers* Day 25. On Monday we went to Vivian’s first session at the Champion Centre. It was pretty interesting, although it was very short! The team got a chance to see Vivian in action...
  • The days are blurring together 2 months ago Well, we’ve made it past the 2-week mark of no seizures! 16 days today. It’s really fantastic. I again don’t want to jinx anything, so don’t want to dwell on it! The days are blurring together and we are so exhausted. Emotionally I am all over the place. Vivian is doing well, but she is...

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